Three Peaks effort up next

One of the first sources of information and comfort Gerry and Sarah found was the Muscular Dystrophy UK website.

Earlier this year they set up the Muscle in with Somhairle fundraising campaign to help raise awareness and vital funds to support the work of Muscular Dystrophy UK into the Duchenne Research Breakthrough Fund.

The family initially set a target of £5000 when the campaign was launched in February.

However, this was surpassed within six months thanks to the support of family, friends and colleagues.

Among the fundraising events have been Bake A Difference events, a half marathon, workplace fundraising events, and even a 24-hour‘fishathon’.

The latest effort - the Three Peaks Challenge - sees three friends taking on Ben Nevis on August 10 before heading for Scafell in England’s Lake District then finally Snowdon in Wales, all within 24 hours.

With the help of the railway which runs to the top of Snowdon, other supporters and most importantly Somhairle himself - aim to gather at top to greet them.

Sarah said:“Obviously we want a cure to be found for Somerhaile, but this is also about helping others in the future and about raising awareness and educating people about Duchenne’s.

“Our friends, family and colleagues have been fantastic but we want to widen the fundraising effort and raise awareness of the condition. Any businesses or individuals who would like to contribute or have ideas for fundraising are welcome to get in touch. We would love to be able to do something like a charity dinner or Christmas raffle.”

While there is no cure, there is a lot happening in the world of research and clinical trials