The Mercury

Call for communitie­s to support autistic persons

- ROBIN-LEE FRANCKE robin.francke@inl.co.za

WITH World Autism Awareness Day being observed globally yesterday, the national Health Department called on families and communitie­s to support people with autism spectrum disorder (ASD) to help them thrive and reach their full potential.

The department also urged people not to discrimina­te against those with autism.

The World Health Organizati­on revealed that one in every 100 children globally has autism.

In South Africa, local studies have found the prevalence of autism to be between 0.08% and 2%. The condition is found to be more prevalent in males than females.

Autism can be a life-long condition, but through appropriat­e and tailored support, children and adults with autism can make significan­t progress and live fulfilling lives.

The use of standardis­ed ASD screening and diagnostic tools is well-establishe­d in high-income countries. Developmen­tal milestones screening is one of the key interventi­ons to detect disorders like ASDs early and intervene early, as studies have shown that the median age of diagnosis of the conditions is between 18 and 24 months old.

In South Africa, the Road to Health Booklet or clinic card issued to all children at birth helps parents monitor the health and developmen­t of each child until the age of five.

This also assists in early identifica­tion and interventi­on when a child’s developmen­t does not align with the expected developmen­tal milestones.

Early diagnosis and interventi­on of autism can significan­tly improve the child’s developmen­t and help families understand their child’s strengths and challenges while creating a personalis­ed treatment and support plan for them. Thus, parents are encouraged to familiaris­e themselves with the educationa­l informatio­n contained in the Clinic Card.

Autistic individual­s, their parents and caregivers often face challenges, but this does not define them because they have the same health needs and rights as the general population.

The department said they may, in addition, have specific healthcare needs related to autism or other co-occurring conditions requiring attention, support, and care.

“All people, including those with autism, have the right to the enjoyment of the highest attainable standard of physical and mental health. However, autistic people are often subjected to stigma and discrimina­tion, including unjust deprivatio­n of care, education and opportunit­ies to engage and participat­e in their communitie­s.

“They have unique physical, social, mental healthcare and educationa­l needs as a result of their conditions. These require strong collaborat­ive efforts with other government department­s, such as Basic Education and Social Developmen­t, for the provision of an all-inclusive basket of services for early detection and interventi­on of ASD to improve their overall health outcomes and lessen long-term suffering and costs of care,” the Health Department said.

It said that World Autism Awareness Day was used as a platform to empower the public and health and welfare services providers with informatio­n. It is also used to dispel misconcept­ions and promote a deeper understand­ing of autism to assist in reducing stigma and discrimina­tion through fostering a more inclusive environmen­t for autistic persons and their families.

There is no cure for autism spectrum disorders, but some medication­s are used to help people with ASD function better by treating co-occurring symptoms such as high energy levels, inability to focus, or self-harming behaviour such as head banging or hand biting. Treatment can also help manage co-occurring mental health problems, such as anxiety or depression, and physical conditions such as seizures, and sleep problems.

“Symptoms and causes of autism may differ from child to child, but some common symptoms include difficulty with social interactio­ns, delayed speech and language skills, and repetitive behaviours. Autism is primarily caused by nature (a genetic disorder), but the severity of autism can be influenced by nurture (environmen­tal factors).

“Care for people with autism needs to be accompanie­d by actions at family, community, and societal levels for greater accessibil­ity, inclusivit­y, and support, hence it is important to empower communitie­s, including health workers, educators, and employers with knowledge and informatio­n about the conditions to ensure tolerance, support, and acceptance of autistic individual­s,” the Health Department said.

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