Ding some sort of normality yone the same opportunities’

ALS has been an entire journey – from learning that I had it, which was devastating because I couldn’t understand it, to eventually discovering what I believe is the meaning of life. Now I believe it’s about giving everything you’ve got to reach a goal in life. Nothing has given me as much satisfaction as what I am doing now.

Before, I went to work to earn money and pursue business and personal gains, which was enjoyable. However, creating solutions that will help others is a priceless feeling: it’s something more beautiful and seeing the smiles on their faces makes it all worthwhile: it’s something you can’t describe.

Most people can’t understand this, they go to work to earn as much money as possible and that’s it. The rest of their time is spent on going out drinking, getting wasted, etc., which can all be fun – temporarily. Nevertheless, I have truly never had so much fun and satisfaction than I have now through helping others; you can’t buy these feelings.

Knowing the situation you’re in, and knowing that there’s no cure for ALS, how do you manage to keep positive?

I’m not positive, I’m realistic. I know what my weaknesses are and I know what my strengths are – and I concentrate on them. I don’t dawn on my condition too much. Sometimes, as we all do, I stop and think and I feel that my life is slipping away. Up until now I just focus on living and working on these projects. At the end of the day, there will come a time when we go to sleep and we won’t wake up – and that’s it. So my perspective has really changed on this: today I know that that day is coming sooner and I’ve accepted this and I am alive now, so I intend to live for the moment.

What’s the one thing you would to pass down to your friends and family?

Don’t complicate matters: keep things simple. Try to do something you love doing – interesting stuff – and think of others. Live a simple life; don’t allow non-important matters to take over your life and become a problem when they’re not. If everyone thought of someone else, the world would be a better place. It’s a very practical idea: if everyone helped at least one person, the world’s problems would be solved.